Positive Life is involved across a number of government, non-government and clinical research settings with the aim to improve the health and quality of life of people living with HIV. These are listed below.
ACCESS | Advisory Committee
The Kirby Institute, UNSW Sydney; Burnet Institute, Melbourne
The Australian Collaboration for Coordinated Enhanced Sentinel Surveillance (ACCESS) of Sexually Transmissible Infections and Blood-borne Viruses database collects deidentified data through a national sexual health surveillance network. The ACCESS database reports on STI and BBV testing and outcomes in priority populations to state and national governments, and in the Kirby Institute’s Annual Surveillance Reports and has become the backbone of enhanced national surveillance in priority populations and is essential to evaluating the National Strategies.
Anal Cancer Advocacy Group | Lead
Positive Life NSW
The Anal Cancer Advocacy Group was established in 2013 to:
- Raise awareness of HPV-related anal cancer in high risk populations (all people living with HIV, HIV-negative gay, bisexual and men who have sex with men [GBMSM], trans and gender diverse identifying people) and the need for regular screening and early detection of anal cancer
- Raise awareness of HPV-related anal cancer in clinicians treating high risk populations and the need for regular screening and early detection of anal cancer
- Advocate for referral services at hospitals (a few major hospitals in centres of populations at high risk) where High Resolution Anoscopy (HRA) can be performed as a diagnostic service
- Advocate for expanded access to HPV vaccination in high risk population groups.
The group meets quarterly and is made up of clinicians, researchers, and representatives from a range of HIV sector organisations and the Cancer Council of NSW, and chaired by Positive Life NSW.
Kirby Institute, UNSW Sydney; Peter MacCallum Cancer Centre, Victoria; Positive Life NSW
The Age-Related Clonal Haematopoiesis in an HIV Evaluation (ARCHIVE) study looks at genomic factors associated with ageing and the development of comorbidities among people living with and without HIV over the age of 55 years.